Tuesday, March 25, 2014

Wretches & Jabberers - Autism Finds It's Voice


On Friday, April 4th at 7:00 pm, Disability Action Center will be joining Moscow Self Advocacy Leadership Network in sponsoring a showing of the Gerardine Wurzburg film "Wretches & Jabberers" at the Kenworthy Theater in Moscow. This inspiring documentary chronicles the world travels of disability rights advocates, Tracy Thresher and Larry Bissonnette, in a bold quest to change attitudes about the intelligence and abilities of people with autism.

As recently as the 1980's, most children and young adults with autism in the US were excluded from normal schooling. Some were placed in mental institutions. Like many children with autism, Tracy and Larry grew up unable to speak. They faced a future of social isolation in adult disability centers. When Tracy was 23 and Larry 34, their lives changed when they learned to communicate by typing. Larry notes, "nothing I did...convinced people I had an inner life until I started typing."

In the film, Tracy and Larry take to the road to promote awareness of the hidden intelligence in those who face speech and communication challenges, connecting with others like them across the globe who struggle to find a means of expression. Tracy, Larry and their support team, Harvey Lavoy and Pascal Cheng, visit Sri Lanka, Japan and Finland, giving interviews and presentations and learning about the lives of people with autism in these countries. Viewers share in their eye-opening experiences as the men negotiate the terrain of travel, culture and new friendships on what they aptly named The World Intelligence Magnified Tour.

The first stop is Sri Lanka, where they visit old friend Chammi Rajapatirana, 35, who they have met at conferences in the US. Together, the group meets with parents of children with autism to demonstrate their communication skills, answer their urgent questions, and appeal to the parents to believe in their children's innate intelligence. "You will be surprised how often we make wrong assumptions about ability," Chammi tells the group.

In Japan, Tracy and Larry meet 16-year-old Naoki Higashida. Naoki is an accomplished artist who has published more than ten books of his stories and drawings but is denied access to public school. Meeting Tracy and Larry is a revelation to him. He says, "I never had a conversation like this with people that communicate the way I do." He eagerly joins the men in presenting at a national autism conference at Tokyo University.

Their final trip is to Helsinki, Finland where they are interviewed by a Finnish filmmaker and present at the Autism Foundation Conference. Here, they meet Antti Lappalainen, 21, and Henna Laulainen, 23. Both are accomplished in their ability to communicate through typing and yet, spend their days doing meaningless chores in adult disability centers. Antti says, "Language is everything I am. Completely different than my misunderstood  appearance."

It is Antti who humorously declares the world divided into "Wretches" - those with limited speech - and "Jabberers" - those who can speak freely. He tells the group, "We poor wretches are better than jabberers. They don't know it yet, but we will tell it to them [at the conference]."  At the end of that conference, Antti strikes a more serious note, asking the audience to "dispel the darkness around us poor wretches. Take us for real people. Don't sideline us."

Throughout the film, Tracy, Larry and their compatriots inspire parents, educators and others with autism through their poignant narratives of personal struggle that always ring with intelligence, honor, hope and courage. Of his experience working on the film, Tracy reflects, "It has had a cathartic learning explosive effect on my life with good movement of ideas, thoughts and feelings. I was feeling less autistic and felt I had purpose in life." Larry adds, "I get proud thoughts thinking Tracy and I can fasten our perspectives on the public's consciousness."

The film showing is fee, but please bring a canned food item to donate to the Moscow Food Bank.

A Film by Garardine Wurzburg
Executive Producer John P. Hussman
Produced by Douglas Biklen and Garardine Wurzburg
Directed by Garadine Wurzburg
Music by J. Ralph
Director of Photography Gary Griffen
A Production of State of the Art, Inc.


Friday, March 14, 2014

Emergency Preparedness for a Person with a Disability


 "On a typical day a good plan can save some lives. On days that are not typical, facing two tornadoes with a focus on preparedness, a great plan can save every life in the building, including my family, and our work family." - Shane Cohea, Director of Safety, Security, and Emergency Preparedness for Norman Regional Health System. (from FEMA's blog)

The Palouse Community Preparedness Fair will be Saturday, March 22, 9am-3pm at the LDS Church on 2600 W "A" St in Moscow. Disability Action Center will be there with information to help a person with a disability or mobility issue be prepared for any emergency.

Being prepared for an emergency is important for anyone, but especially so for someone with a disability or mobility issue. Steps you can take to be prepared include:
  • Make a list of what you use every day. Identify the essential things you need to get through a minimum of 3 days (recommended) safely and comfortably if people cannot get to you. 
  • Stock your custom essentials in your disaster kit. For example, your kit may contain durable medical equipment, assistive technology, food for special diets, prescription medicines, diabetic supplies, hearing aids and batteries, or a manual wheelchair. If you have a service animal, don't forget food and supplies for your animal.
  • Prepare for a loss of electrical power. You should plan alternate ways to charge your communication and assistive technology. Keep your gas tank at least half full because gas stations rely on electricity to run their pumps. Put containers of ice in your refrigerator to help keep food cold. Know where the manual release lever is on your garage door. These can be heavy to open and you may need help.
A basic emergency supply kit should include the following items:
  • Water, one gallon per person per day for at least three days. Plan for drinking and sanitation.
  • Food, at least a three day supply of non-perishable food. Include a manual can opener
  • Battery powered or hand crank radio, and extra batteries
  • Flashlight
  • First aid kit
  • Whistle to signal for help
  • Dust mask to help filter contaminated air
  • Moist towelettes, garbage bags for personal sanitation
  • Tools to turn off utilities
  • Local maps
  • Cell phone with chargers, inverter or solar charger. Important numbers.
Call your power company before any blackouts. Many utility companies keep a list and map of locations of power-dependent customers. Have an extra battery for your motorized wheelchair or scooter. Have a talking or Braille clock with extra batteries if you have a visual impairment. Consider getting a small portable battery operated tv if you have hearing loss. Emergency broadcasts may give information in ASL or open captioning
For more information about being prepared visit FEMA's website