Friday, December 21, 2012

Treaty for the disabled falls short of ratification


By Bobby Caina Calvan , Globe Staff
WASHINGTON -- Senator John Kerry made an impassioned but ultimately futile plea for ratifying a treaty aimed at advancing the rights of the blind and disabled across the globe, urging Congress to do for the world what has already been accomplished in the United States to protect Americans with disabilities.
In the end, Kerry and other supporters fell five votes short of the 66 needed for ratification of the international pact known as the UN Convention on the Rights of Persons with Disabilities -- hailed by advocates as a human rights effort to transform how nations across the world treat those with long-term physical, mental and intellectual impairments, particularly children who face a future of bleakness because of their disabilities.
“We will keep fighting till we win for disabled, vets,” Kerry tweeted after the vote.
It was a clear disappointment for the senior senator from Massachusetts who pushed the bill as an extension of the work of the late Senator Edward Kennedy, a champion for expanding rights for the disabled and a co-sponsor of the landmark Americans With Disabilities Act, which served as a model for the treaty.
“This is not about politics, it is not about ideology,” Kerry said on the Senate floor before the vote. “It’s about people.”
Raise Your Voice
Click to contact candidates or elected officials about this issue.The treaty had already been approved by the European Union and 125 countries, including China and Russia.
Eight Republicans, including Senator Scott Brown of Massachusetts, and the Senate’s two independents joined Democrats in voting 61-38 in favor of ratification. The Constitution requires a two-thirds majority of the Senate for a treaty to be ratified.
Proponents argued that the treaty would help further advance rights for the disabled, including Americans already protected by the landmark anti-discrimination law but who, under the treaty, would benefit from barriers falling across the world.
The treaty was supported by President George W. Bush, who helped negotiate it and whose father, President George H. Bush, signed the ADA into law in 1990. The United States became a signatory to the treaty in 2009 under President Obama, a move signaling the country’s intent to ratify the agreement.
Former Senate Majority Leader Bob Dole, looking frail and requiring a wheelchair, returned to the chamber on Tuesday in a symbolic show of support for the treaty.
Senator John McCain, a Republican from Arizona and staunch supporter of the treaty, read from a letter written by Dole.
But McCain’s fellow Republican from Arizona, Senator Jon Kyl, helped defeat the bill.
“Just as with many treaties before this one, the CRPD would offer cover to regimes that have no intention of actually helping their citizens, while needlessly tying the hands of countries like the United States that have actually made great strides in this area,” Kyl said in a floor speech.
Kyl said the treaty would be toothless in forcing countries to adopt measures that would reduce the physical barriers that keep the disabled from having the same access to public facilities as able-bodied people.
Last week, former Senator Rick Santorum convened a news conference to take issue with wording in the treaty alluding to reproductive rights, which some conservatives take as code for abortion. Santorum and other opponents say the treaty risked the usurping of US sovereignty and the rights of parents with disabled children.
In a statement released by his office after the vote, Kerry called the vote one of the saddest in his 28 years in the Senate, “a wakeup call about a broken institution that’s letting down the American people.”
“Today the dysfunction hurt veterans and the disabled, and that’s unacceptable. This treaty was supported by every veterans group in America and Bob Dole made an inspiring and courageous personal journey back to the Senate to fight for it,” Kerry said.
Veterans, many maimed in combat, joined business groups, advocates for the disabled, and a few high-profile Republicans in attempting to change enough minds among a solid bloc of GOP members who thwarted passage of the bill because of concerns over abortion, US sovereignty, and timing.
“I could not sleep tonight if I were one of the senators who did not vote for this today,” said Steve Rothstein, president of the Perkins School for the Blind in Watertown, which is working in 67 countries to better the lives of the blind by building schools, training teachers, and advocating for civil rights of the sight-impaired. Some 4.5 million children worldwide, he said, don’t go to school because they are blind.
“It’s embarrassment for our country, which has been such a leader in disability rights,” Rothstein added. “Many counties don’t believe in the value of all human beings.”
Rhonda Neuhaus, who was born without legs, wept as the vote was tallied. “I’m angry, and I’m very sad,” said Neuhaus, who attended Brandeis University and is now a policy analyst at the Washington-based Disability Rights Education and Defense Fund.
“Today, the irrational and outrageous opposition of a bloc of Republican senators denied Senate ratification of the CRPD, betraying the US’s historic role as a global leader in fighting discrimination and opening doors of opportunity for people with disabilities,” said Wade Henderson, president of the Leadership Conference on Civil and Human Rights.

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Paralympist Muffy Davis on dreams and being your very best


A ski accident changed Muffy Davis’ life, but it didn’t derail her Olympic dreams. She brought home three gold medals in the summer London Paralympics, and now she’s a role model for everyone to do their very best, as well as for those with disabilities — and with dreams. Those are lessons she wants to teach her daughter, Elle, 4, and the rest of the world. “Your body may be broken, but who you are is whole and shines — and to share that and give that inspiration and hope.”
Katherine Jones — Katherine Jones / Idaho Statesma

























She rolls her wheelchair into a room.
She says: “Instantly, the people who don’t know me, the first thing that comes across their minds is what I can’t do.
“And that’s what I’m trying to change.”
Muffy Davis reaches behind her wheelchair and pulls out a nondescript black pack. Nestled in the bag is a collection of medals: bronze, silver and gold. Each medal has a certain heft to it; none more so than the gold. Especially the gold. It has a certain — presence.
The medals don’t stay in the bag, nor do they reside in a safety deposit box. When she speaks to groups of schoolchildren, she brings them all along and passes them around, one at a time.
“I want people to wear them, to know what it feels like. … That’s the value for me … sharing (them), letting people feel the power of the medal.
“And then going and finding their own (dream).”
When Muffy was an 8-year-old skier in Sun Valley, she was already planning her Olympic future. And while the medals she now holds originate in that childhood determination, her path ended up being far different than what she imagined.
“I was an Olympic hopeful, but I am a Paralympic medalist. Who knows if I would have made it to the Olympics? I was a hopeful; it might not have happened. But I know what I am now: I am a Paralympic gold medalist.”
In her teens, Muffy was on the U.S. Development ski team, about to be named to the U.S. Ski Team (along with teammate Picabo Street). But that all changed when she was 16, on a curve at 50 mph, during a routine training run.
“You often wonder what you would have been, but I have a great life. I’ve done everything I’ve ever wanted to do — and more than I ever thought I would do.”
The first tree she hit crushed her spine. The second tree shattered her helmet. In the hospital, when doctors asked her to wiggle her toes, she couldn’t.
“I have been blessed that I never had to change my dreams or my goals because of my disability. ... Sports is a passion in my life. That was my first initial fear when I had my accident. … I learned that was an unfounded fear, and I can still do everything I love.”
Muffy, 39, is paralyzed from the middle of her ribs down. After the crash, she channeled her competitive energy into therapy. She laughs, remembering how she’d turn physical therapy into a race — like her three-minute “9-yard dash” in braces. Convinced she would walk again, initially, she declined the idea of adaptive skiing.
But then it snowed, and, frankly, she missed Baldy, Sun Valley’s ski mountain.
“On the mountain, I was free; on the mountain, I was whole. … (The mountain) became where my life changed — and I knew that someday it would become my freedom again. It was just figuring out how to get there.”
Muffy is an ambassador for Disabled Sports USA. Their motto is, “If I can do this, I can do anything.”
“That’s the way I feel sports have been for me. After my accident, getting back on the slopes was like, ‘Oh. I can still ski. Oh. Well then, I can go to school.’ It’s so empowering, using sports throughout life for what is possible, for what do you want to do. Don’t limit yourself.”
So Muffy skied again. “I had unfinished business,” she says now. In 1998, she took bronze at the Paralympic Winter Games in Nagano, Japan, riding a monoski. She won gold in the 2000 world championships, three silver medals in the 2002 Paralympic Winter Games in Salt Lake City, where she now lives, and then she retired.
“I thought I was done. The competition, the skiing — it couldn’t get any better. I competed in my home country, I got on the podium three times. I had a wonderful ski racing career, from able-bodied through adaptive.”
Always active, Muffy met the man who would become her husband on a rafting trip down the Grand Canyon. She and Jeff Burley, a recreation therapist for adaptive sports, were married in 2004, and in 2008, their daughter Elle was born. To keep in shape after her pregnancy, Muffy took up handcycling.
The sport is so new that when Muffy was injured 23 years ago, adaptive mountain bikes and handcycles didn’t exist. On her bike, Muffy lies on her back — an aerodynamic position — and pedals with her arms. She describes it as “a street luge with gears.”
“I love — love — riding. I love handcycling, almost more than skiing, which seems taboo (to say). I feel like I am the athlete I was before my accident. …
“Most of it is how hard can you crank, how hard can you get in that ‘pain cave.’ … I wouldn’t say I like the pain cave, but I like knowing I can push myself hard and push myself through that pain.
“I know (the pain) will end — dig deep. How hard can you dig, how long can you hurt? And that’s when you’re going to win.”
Driven athlete that she is, she set goals. She entered races, she went to a camp; on a whim, she competed in nationals — and won. The sport is so new that the field wasn’t deep, she says, but that win placed her on the U.S. World Championship team. In the world championships, Muffy got three silver medals.
“Once I knew I was competitive internationally, everything kind of changed.”
Going for the Paralympics again — competing on such an elite level — meant a serious, full-time commitment, a decision that, this time, affected more than her.
“You’ll never make the Paralympics or Olympics unless it’s a 100 percent commitment. And that means a sacrifice for everyone, the whole family. … So we went for it.
“It was a team. … That’s why we joke (that) I got three medals: one for me, one for Jeff, one for Elle.”
Three golds in London: in the handcycle time trial, road race and handcycle relay.
“I used to say ‘God made me to be a ski racer.’ Just this last year, I re-edited that. Now I say, ‘God made me to be a competitor.’ That’s where I am fully Muffy — when I’m in the starting gate or on that field to play, or pushing myself to be my best in athletics. That’s where I’m really me, 100 percent.”
(The full story continued in link below)

Read more here: http://www.idahostatesman.com/2012/10/21/2317891/light-lineywhat-are-your-dreams.html#wgt=rcntnews#storylink=cpy


Read more here: http://www.idahostatesman.com/2012/10/21/2317891/light-lineywhat-are-your-dreams.html#wgt=rcntnews#storylink=cpy

When Muffy was an 8-year-old skier in Sun Valley, she was already planning her Olympic future. And while the medals she now holds originate in that childhood determination, her path ended up being far different than what she imagined.
“I was an Olympic hopeful, but I am a Paralympic medalist. Who knows if I would have made it to the Olympics? I was a hopeful; it might not have happened. But I know what I am now: I am a Paralympic gold medalist.”
In her teens, Muffy was on the U.S. Development ski team, about to be named to the U.S. Ski Team (along with teammate Picabo Street). But that all changed when she was 16, on a curve at 50 mph, during a routine training run.
“You often wonder what you would have been, but I have a great life. I’ve done everything I’ve ever wanted to do — and more than I ever thought I would do.”
The first tree she hit crushed her spine. The second tree shattered her helmet. In the hospital, when doctors asked her to wiggle her toes, she couldn’t.
“I have been blessed that I never had to change my dreams or my goals because of my disability. ... Sports is a passion in my life. That was my first initial fear when I had my accident. … I learned that was an unfounded fear, and I can still do everything I love.”
Muffy, 39, is paralyzed from the middle of her ribs down. After the crash, she channeled her competitive energy into therapy. She laughs, remembering how she’d turn physical therapy into a race — like her three-minute “9-yard dash” in braces. Convinced she would walk again, initially, she declined the idea of adaptive skiing.
But then it snowed, and, frankly, she missed Baldy, Sun Valley’s ski mountain.
“On the mountain, I was free; on the mountain, I was whole. … (The mountain) became where my life changed — and I knew that someday it would become my freedom again. It was just figuring out how to get there.”
Muffy is an ambassador for Disabled Sports USA. Their motto is, “If I can do this, I can do anything.”
“That’s the way I feel sports have been for me. After my accident, getting back on the slopes was like, ‘Oh. I can still ski. Oh. Well then, I can go to school.’ It’s so empowering, using sports throughout life for what is possible, for what do you want to do. Don’t limit yourself.”
So Muffy skied again. “I had unfinished business,” she says now. In 1998, she took bronze at the Paralympic Winter Games in Nagano, Japan, riding a monoski. She won gold in the 2000 world championships, three silver medals in the 2002 Paralympic Winter Games in Salt Lake City, where she now lives, and then she retired.
“I thought I was done. The competition, the skiing — it couldn’t get any better. I competed in my home country, I got on the podium three times. I had a wonderful ski racing career, from able-bodied through adaptive.”
Always active, Muffy met the man who would become her husband on a rafting trip down the Grand Canyon. She and Jeff Burley, a recreation therapist for adaptive sports, were married in 2004, and in 2008, their daughter Elle was born. To keep in shape after her pregnancy, Muffy took up handcycling.
The sport is so new that when Muffy was injured 23 years ago, adaptive mountain bikes and handcycles didn’t exist. On her bike, Muffy lies on her back — an aerodynamic position — and pedals with her arms. She describes it as “a street luge with gears.”
“I love — love — riding. I love handcycling, almost more than skiing, which seems taboo (to say). I feel like I am the athlete I was before my accident. …
“Most of it is how hard can you crank, how hard can you get in that ‘pain cave.’ … I wouldn’t say I like the pain cave, but I like knowing I can push myself hard and push myself through that pain.
“I know (the pain) will end — dig deep. How hard can you dig, how long can you hurt? And that’s when you’re going to win.”
Driven athlete that she is, she set goals. She entered races, she went to a camp; on a whim, she competed in nationals — and won. The sport is so new that the field wasn’t deep, she says, but that win placed her on the U.S. World Championship team. In the world championships, Muffy got three silver medals.
“Once I knew I was competitive internationally, everything kind of changed.”
Going for the Paralympics again — competing on such an elite level — meant a serious, full-time commitment, a decision that, this time, affected more than her.
“You’ll never make the Paralympics or Olympics unless it’s a 100 percent commitment. And that means a sacrifice for everyone, the whole family. … So we went for it.
“It was a team. … That’s why we joke (that) I got three medals: one for me, one for Jeff, one for Elle.”
Three golds in London: in the handcycle time trial, road race and handcycle relay.
“I used to say ‘God made me to be a ski racer.’ Just this last year, I re-edited that. Now I say, ‘God made me to be a competitor.’ That’s where I am fully Muffy — when I’m in the starting gate or on that field to play, or pushing myself to be my best in athletics. That’s where I’m really me, 100 percent.”

Read more here: http://www.idahostatesman.com/2012/10/21/2317891/light-lineywhat-are-your-dreams.html#wgt=rcntnews#storylink=cpy
Read more here: http://www.idahostatesman.com/2012/10/21/2317891/light-lineywhat-are-your-dreams.html#wgt=rcntnews#storylink=cp
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Idaho Council on Developmental Disabilities

The Idaho Council on Developmental Disabilities is recruiting two new self-advocate members. We are looking for individuals with developmental disabilities who can bring a strong voice to the Council, understand the responsibilities of being a member, and know about the time commitment to prepare for and attend quarterly meetings. 
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Please go to the Council website at www.icdd.idaho.govfor more information about the Council and to download a Member application. All applicants must fill out the Council application and the Governor’s application. Completed applications should be sent to the Council office attention Tracy Warren.
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Hoyer: Entitlement benefit cuts on the table in talks with GOP on 'fiscal cliff'


Entitlement cuts should remain on the table as party leaders seek to hash out an end-of-the-year budget deal, Rep. Steny Hoyer (D-Md.) said Tuesday.
A number of Democratic leaders — including Reps. Nancy Pelosi (Calif.), John Larson (Conn.) and Xavier Becerra (Calif.) — have said they would support some spending reductions in Medicare, but that cuts to direct benefits should not be a part of the negotiations. Along with Senate Majority Leader Harry Reid (D-Nev.), they also maintain that Social Security reform has no place at all in the "fiscal cliff" talks.
But Hoyer, the Democratic whip, warned that taking entitlement benefits off the table is a bad place to start the negotiations. Such entrenched positions are little different, he said, than the Republicans' refusal to consider hikes in tax rates — a central element of President Obama's deficit-reduction proposal.
Hoyer said GOP proposals to raise the Medicare eligibility age, make wealthier seniors pay higher Medicare rates and limit the cost-of-living increases for some federal programs are legitimate ones, even as he warned he might not support them.
“They clearly are on the table,” Hoyer said of the Medicare changes during his weekly press briefing in the Capitol. “They were on the table in the Boehner-Obama talks. They've been on the table for some period of time. That does not mean that I'd be prepared to adopt them now, but they're clearly, I think, on the table.”
Hoyer said the GOP's proposal to reduce the cost-of-living increases to certain federal programs – the so-called chained consumer price index (CPI) – should also be considered as part of the fiscal cliff talks.
“We have many Republicans say 'absolutely not' ... on [higher] rates or revenues,” he said. “There are Democrats on our side who say 'absolutely not' if they do A or they do B or they do C. … You've got to put everything on the table.”
CPI, a measure of inflation that attempts to gauge cost-of-living fluctuations, is used to index a number of government programs – including food stamps, federal pensions and determining tax brackets. But in the current deficit-reduction fight it's most often used in reference to Social Security payments.
Indeed, Senate Minority Leader Mitch McConnell (R-Ky.) last week urged that Social Security adopt the chained CPI formula.
“Those are the kinds of things that would get Republicans interested in new revenue,” McConnell told The Wall Street Journal.
Many Democrats have rejected the chained CPI for Social Security because it would reduce the cost-of-living increases under the popular seniors' program.
Hoyer's office said Tuesday that Hoyer's support for having chained CPI on the table was not a reference to Social Security, which they say he wants on “a separate track.” 


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People With Disabilities, and Reaching the Federal Poverty Level.

SSI, People With Disabilities, and Reaching the Federal Poverty Level. Information Bulletin #366 (11/2012). Supplemental Security Income (SSI) is basically a federal program for people who are disabled (and older Americans). As of 2011, there were about 6.7 million people with disabilities who received SSI (another 1 million recipients were over 65). These people are the poorest of all the disabled people in the country. Most of them do not qualify for either Social Security or Medicare; some receive both SSI and Social Security, but combined only to the SSI level. Throughout the recent election campaign and well before that, there has been virtually no discussion, mention or let alone a moral outrage addressing a basic minimal, basic, livable support for people who struggle to survive on SSI. The current monthly federal SSI grant is $698 a month ($8,376 annually) for a single person and for a couple it’s $1,086 a month ($13,032 annually). SSI eligibility automatically triggers Medicaid eligibility. States have the option to provide a State Supplement to the federal SSI grant. Of the 6.7 million people with disabilities who somehow survive on SSI, only 1.6 million, who live in the community, receive a State Supplement. By and large, most States supplement SSI for persons who reside in personal care homes, Medicaid facilities, nursing homes, and other institutions – but not for people with disabilities who live independently in the community. The amount of institutional SSI State supplement is much higher than the SSI State supplement to live independently in the community. Hmmm. Sounds like another institutional bias, contrary to ADA’s “the most integrated setting” a la Olmstead. Let’s put the monthly federal SSI sums in some perspective. The federal poverty level is $10,890 for a single person and $14,710 for a couple, compared to the SSI federal $8,376 and $13,032 respectively. As inadequate as the federal poverty level is, it should be the bottom benchmark! For people with disabilities who must survive on SSI, they live on 75% of the federal poverty level for a single person and 83% of the FPL for a couple. This gap has been approximately the same for the last ten years. For those persons who reside in the community on SSI, to reach just the federal poverty level, the federal SSI grant (or a State supplement) would have to increase by $209 a month for a single person and $140 for a couple. Other than Alaska, no State provides that amount of a State Supplement for single persons with a disability who reside independently in the community. Only five States provide more than $140 a month for a couple. We all know how extremely difficult it is for a SSI recipient who is disabled to find a place to live that they can afford. The “2010 Priced Out” Report clearly demonstrated how the housing market overwhelmingly trumps the SSI grant. What advocates could do: 1. This is a federal issue. We do not believe any States will voluntarily increase their SSI State Supplements so people could afford to live healthy and safe lives independently in the community. 2. We need to make this a moral issue! It’s an outrage that the poorest disabled and elderly Americans are totally ignored and forgotten. 3. SSI cuts across all disability categories and the elderly. Therefore, increasing SSI is a great unifying and organizing issue. 4. Increasing the federal SSI amount even to the extremely inadequate federal poverty level is an economic stimulus on both a federal and State levels. People on SSI spend their entire grants just to survive, putting their entire grants into the economy. These are federal allocations well spent! 5. Where is the White House on this issue? Call the White House Domestic Policy, (202) 456-5594, and let them know. 6. Where are your U.S. Senators and House of Representatives who claim to represent and care about persons with disabilities and the elderly? Call them. Steve Gold, The Disability Odyssey continues Back issues of other Information Bulletins are available online at http://www.stevegoldada.com with a searchable Archive at this site divided into different subjects. Information Bulletins will also be posted on my blog located at http://stevegoldada.blogspot.com/ To contact Steve Gold directly, write to stevegoldada1@gmail.com or call 215-627-7100. Ext 227.
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The Autism NOW Answer Series #1

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Risk Management Consultation


Labor & Industries Risk Management Consultants can help you protect your employees and your profits.
What business risks do you face? How do you manage them? Do you know the connection between workplace safety and cost control? What would you do if one of your employees filed a workers’ comp claim?
Risk Managers can:
  • Show you why workplace safety makes good business sense.
  • Provide data and analysis specific to your business that shows how claims can affect the premiums you pay.
  • Discuss your “claim-free discount” and steps you can take to protect it.
  • Show you the cost/benefit of claim management strategies .
  • Identify return-to-work options and resources so you can return your injured employee to productive work sooner.
  • Review best practices in hiring strategies and procedures.
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American Girl Dolls Embrace Differences and Disabilities


ht american doll hearing aid nt 121128 main American Girl Dolls Embrace Differences and Disabilities
I must admit, I find American Girl Dolls slightly unnerving. They are so eerily lifelike, and I know it’s a cliché, but the eyes really do follow you everywhere. My daughter has one, and we put it in the closet every night because mommy is a little crazy.
Despite these misgivings, it’s hard not to cheer for a doll company that goes out of its way to represent girls from all walks of life and every circumstance. The new Special Sparkle section in its  holiday catalog includes a miniature service dog in harness, a hearing aid and an allergy-free lunch kit.
“We have a long history of speaking to diversity and making girls feel good about themselves, and this is just another way we are expanding on the idea,” said American Girl Doll spokeswoman  Julie Parks.
Whereas many dolls from high-end companies resemble a stereotypical beauty unattainable for most little girls, American Girl has always seemed to strive for all-inclusiveness. The dolls come in a vast selection of skin tones, hair color and eye color, which can be mixed and matched so the doll resembles its owner. Now they can also be fitted with glasses, braces for the teeth, crutches or a wheel chair, and the company recently began to offer dolls without hair to represent those who have lost hair to cancer.
American Girl books and movies also do a good job of highlighting problems girls are likely to encounter in life. This year’s “Doll of the Year” McKenna is a talented gymnast who struggles with injuries and a learning disability. In the book and movie about her experiences, Jesse, her brainy friend and tutor, is confined to a wheel chair.
 Dr. Ari Brown, a developmental pediatrician in Austin, Texas, applauds American Girl’s mission of highlighting differences and a message of acceptance.
 ”I think it’s great American Girl tries to have dolls that have the same hodgepodge of traits and features you actually see in kids,” Brown said.
Brown said she also believes playing with a doll that uses a hearing aid,  requires a special diet or depends on a service dog can be an enriching experience for all girls, even if they themselves don’t have special needs.
“It can help kids learn to be more accepting of others who are different from them,” she said.
Perhaps because acceptance  for all is part of American Girl’s  mission, it has been more successful than other toy makers that have  attempted to make dolls with disabilities. Barbie’s wheelchair-bound friend, Share a Smile Becky, is a notable example. Even consumers who overlooked the condescending name couldn’t forgive the fact that Becky’s chair didn’t fit into the Barbie Dream House elevator.
Girl Power aside, all this diversity might have a limited reach. The price tag for a doll is $105, and from there the cash register never seems to stop ringing. The wheel chair costs $38, the hearing aid $9 and the allergy-free lunch bag $28.  Let’s not even mention the hair styling, ear piercing and tea parties.
Yet in spite of the steep cost of ownership, Parks said feedback has been overwhelmingly positive for the dolls in general and the new disability accessories in particular.
“Parents realize they are investing in something that builds strong character and helps every girl reach their full potential, no matter who they are or what they look like,” she said. “It’s all about engaging them in positive experiences and helping them fit in.”


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