Wednesday, December 23, 2009

Britain’s Missing Top Model

I enjoy watching the cable television channel BBC America and have seen the commercials advertising a show called "Britain's Missing Top Model" but had never taken the time to watch it until last night. I have to admit, I thought the show was pretty good.

The BBC America website describes the show as:
"Eight beautiful disabled models, seven tough assignments, and one incredible prize; is the modeling world ready for them? Eight young women compete to break down barriers and overcome prejudices in the exclusive modeling industry. One will win her dream of a photo shoot in Marie Claire magazine. The women will participate in challenges that range from modeling for popular British retailers to mastering the catwalk. Britain’s Missing Top Model sets out to challenge the fashion industry's boundaries and redefine society's concept of the ideal woman."

I have had the opportunity to walk on both sides of the fence as far as experiencing life without and now with a disability. I spent the first 19 years of my life as an "able-bodied person", I doubt that term is deemed "politically correct" today so if you feel the need, write a comment and complain :-), I promise to post it. For the past 31 years of my life I have used a wheelchair, so I feel like I have some experience either way.

I plan on continuing to watch the show until the season ends and I will post my views after each episode. Please check it out and send in your comments. Let me know what you think of the show and how it relates to the perception of people with disabilities.

This evening's show had the women interacting with male models who did not have a disability. They had to do an "intimacy" exercise at the start of the episode, that split them into couples, then the couple had to look at each other and gradually end up touching and embracing.

The next task for the women was to do an audition for a short TV commercial, again, with a male model without a disability. The woman had to "act" as if the man was her "lover" and portray that the ice cream she was eating was so good that she wouldn't even share it with someone she loves. It was very interesting to watch the woman who is deaf try to convince the casting person that they should allow her to use signing in the commercial. It ended up that they allowed her to do two different auditions, one with signing and the other with her talking. Her ability to show emotion and expression was incredible when she used signing!

The final task was an intimate photo shoot with a male model. The woman who is a paraplegic ended up with the best scores from the judges, and she was beautiful, BUT, I was disappointed that they had her on a sofa and not in her chair.

Unfortunately, the woman who is deaf ended up being eliminated from the show this week. I am looking forward to next weeks episode.

The show comes on Tuesday evenings. To see the air times in your area, visit BBC America's website.

I look forward to your comments on this subject.

Thanks for reading!

Sharon

Tuesday, December 15, 2009

Guidelines for Attendant Training

Guidelines for Attendant Training

You will need to teach your newly hired PCA what you need done in terms of your personal
care, and how he or she can best meet your needs. It is helpful to utilize your self- care checklist when training your PCA. The checklist ensures that you have covered all aspects of your care, breaks down each task into manageable steps, and can be used as a written resource for your caregiver in the future. In order to help your personal care assistant better understand your needs, have a frank discussion about your disability and how it relates to what you can and cannot do for yourself. Encourage your PCA to ask questions throughout the training process and clarify any medical or technical terms as you go along.

Each personal care task (for example - bathing) should be broken down into smaller, manageable steps. Give the PCA instruction on each step and explain why it is important to you that each step be done the way you request. Remember that repetition is the key to learning, therefore, it may take your PCA several attempts before he or she performs the task exactly the way you would like. Encourage your PCA to give you feedback and ask questions. Give positive feedback when your caregiver gets the task right and use humor whenever possible.

Your Relationship with Your PCA

Providing a positive work environment is a key factor in keeping your personal care assistant. Good communication is the key to maintaining any relationship - and your relationship with your caregiver is no exception. It is important to keep communication pathways open. If you sense any problems or misunderstandings with your caregiver, get them out in the open by confronting the issue and discussing it as quickly as possible.

In order to facilitate a positive relationship, you must treat your PCA with respect, and be as flexible as possible. Keep in mind that he or she has responsibilities and commitments outside of providing your personal care. Respect his or her privacy and base your relationship on honesty, mutual respect and open communication.


Giving (and receiving) feedback is an important aspect of the relationship between caregiver and employer. When it becomes necessary to give critical feedback, make it as positive and constructive as possible. Although it can be difficult, give the feedback immediately after your PCA performs the task or exhibits the behavior you are criticizing. Give feedback on only one incident at a time, and provide feedback on the person's actions, not the person. Make sure you use the opportunity to help your PCA do the job more effectively rather than launching a personal attack. After giving critical feedback, be sure to clarify how you would like the task performed or the situation handled in the future.


Your style of communication can also be an important factor in maintaining a comfortable working relationship with your caregiver. Utilizing an assertive rather than an aggressive style will foster open communication. An assertive person is open to feedback from others, is direct and gives clear messages. The assertive individual is also honest with him or herself and also with others. Aggressive behavior does not show consideration for the feelings of others and tends to shut down the lines of communication.

Your lifestyle may differ from that of your personal care assistant. You may have differences of opinion over something as minor as which television programs or music you prefer, or over major issues such as smoking, drug and/or alcohol use. Consider your tolerance level for such behavior and make your stand clear. If you do not want someone to smoke in your home, for example, ask your PCA to smoke outside. Do not allow drinking or drug use to interfere with your PCA's ability to meet your needs and perform the job.

In order to provide an optimal working environment for your PCA and foster a positive relationship, there are several things to keep in mind when you interact with your caregiver. You do need to establish your position as employer as soon as possible to ensure that your needs will be met in the manner that you would like. However, keep in mind that the job of providing personal care is not easy, and try not to be too demanding. It is important to be kind and courteous when you ask for assistance. When communicating your needs try putting yourself in your caregiver's place, and think about how you would want someone to talk to you. It is upsetting to be taken for granted, so try to show your appreciation by thanking your PCA.

Being organized will benefit yourself as well as your attendant. Make a list of the tasks you need to have done each day of the week. This makes the best use of the time you have with your caregiver and forces you to anticipate your future needs in terms of daily activities and errands. Think about things like grocery and errand needs - which day you plan on shopping and when. Do you need assistance with your laundry and when does it need to be done? Are you able to do your bowel program in the evening so as to lighten up the morning activities? When you organize your needs and prepare for the week, you communicate respect for your PCA's time, and both of you are likely to get more done with the time you have together.

Unfortunately, it is possible that the person you selected to be your caregiver may not actually be a good match for you or is unable to meet your needs for whatever reason. If this is the case, it is always preferable to part ways on the best possible terms, as you may want to use your PCA as a back-up caregiver in the future (if the circumstances allow). Make sure your PCA returns your housekey and any other personal effects. Get a forwarding address and phone number if possible, in case you need to contact him or her in the future.

Whether your caregiver is terminated or leaves for his or her own reasons, you will once again need to start the process of finding someone to provide your care. It is preferable to start this process while your PCA is still with you. However, this is not always possible, as many times, the caregiver leaves with little or no notice. This is why it is important to have back-up care in place. Hopefully, the knowledge gained through the experience of hiring and managing your first PCA will make the process of finding a replacement caregiver easier.

YOU ARE NOT ALONE: TBI Survivors Network

KXLY TV will be running a PSA during the week of December 21st highlighting the experiences of individuals with Traumatic Brain Injuries (TBI). 1.4 million people sustain a traumatic brain injury each year. Lives are changed in a blink of an eye. (For a group near you call 800-758-1123)

BUS SERVICE MAY EXTEND TO SILVERWOOD

On December 8, 2009, Michelle Porter (Americorps employee), and Virgil Edwards (DAC staff), held a meeting to discuss the possibility of extending bus service to Silverwood Theme Park. The people in attendance included John Austin from Panhandle Area Council; Bob Spaulding and Aron Eirls from Citylink; and Helen Stephens from N.I.C.E transportation. Representatives from Silverwood were also at the table and included Joanne Morier, John Jacmim and Nancy Giammarco.

After much discussion, it was decided that this new bus route could be a viable option and it was agreed that this could happen as long as it would be cost effective to do so.

The next meeting will be held on Wednesday, January 20, 2010 at the DAC office. The same group of individuals will be working on this project with hopes of being in effect by this summer. We will keep everyone posted.

Contributed by the CDA DAC team.

DAC-NW December News

HAPPY HOLIDAYS!!

The entire staff from all three DAC offices in Lewiston, Moscow, and Coeur d’Alene, wishes you a safe and happy holiday season. We hope that 2010 brings you joy and happiness throughout the entire year!


DAC BECOMES A MEMBER OF THE GREATER SANDPOINT CHAMBER OF COMMERCE

We are excited about our new membership with the Chamber in Sandpoint and the opportunity to attend the first luncheon of 2010 on January 14th. We will be using our NEW display board to educate the other Chamber members about the services DAC has to offer. Our membership includes a free web ad for one month and a free full-page ad in their newsletter.

Contributed by the CDA DAC team.

Thursday, December 10, 2009

NCIL: Celebrating 25 Years of Independent Living

NCIL is the oldest cross-disability, national grassroots organization run by and for people with disabilities. NCIL's membership includes people with disabilities, Centers for Independent Living, Statewide Independent living Councils, and other disability rights organizations. As a membership organization, NCIL advances Independent Living and the rights of people with disabilities through consumer-driven advocacy.

1) What’s Happening in the Nation’s Capital?

The CLASS Act Survives Attempted Death-Blow, Remains in Senate Reform Bill
On Friday, December 4th, after two sessions of debate in as many days, the U.S. Senate took two votes on amendments regarding the CLASS Act as part of healthcare reform.
The first vote was offered by Senator Whitehouse (D-RI). It was a “Sense of the Senate” that premiums paid into the CLASS program would be used solely for their intended purpose, not as part of the general federal budget. This amendment passed 98-0. While NCIL supported this amendment, a Sense of the Senate holds no enforcement procedure, but merely expresses the thoughts of the Senate.
The second amendment, offered by Senator Thune (R-SD), was to strip the CLASS Act entirely from the Senate bill. NCIL has been warning our members about the imminent need to kill this amendment. Debate on the amendment was ceased, a vote held, and the measure failed. Amendments on this bill require 60 votes to pass, and the amendment to kill the CLASS Act failed by 13 votes. Seven Democratic senators, who generally support reform, did not support the CLASS program. They were:
-Mark Udall of Colorado
-Even Bayh of Indiana
-Kent Conrad of North Dakota
-Mary Landrieu of Louisiana
-Blanche Lincoln of Arkansas
-Claire McCaskill of Missouri
-Mark Warner and Jim Webb of Virginia, and
-Ben Nelson of Nebraska.
View the Roll Call vote to see how your senator voted - click here! Please call your senators to thank them if they supported the CLASS program by voting NO to the Thune amendment. You can find the phone number you need by clicking here.

If your Senator(s) voted to strip the CLASS program from the healthcare reform bill, let them know your dissatisfaction. There could be another amendment or deal brokered that could strip the CLASS Act from the bill. Related Story - click here.

2) National News

A Proclamation by the President on the International Day of Persons with Disabilities 2009
Source: The White House- This year, in an effort to renew our global commitment to human rights and fundamental freedoms for persons with disabilities, the United States became a proud signatory of the United Nations Convention on the Rights of Persons with Disabilities. This treaty represents a paradigm shift, urging equal protection and benefits for all citizens, and reaffirming the inherent dignity and independence of the 650 million people living with disabilities worldwide.
Today, as we commemorate the International Day of Persons with Disabilities, we celebrate the skills, achievements, and contributions of persons with disabilities in America and around the world. We recognize the progress we have made toward equality for all, and we rededicate ourselves to ensuring individuals with disabilities can reach their greatest potential.
Despite our increased efforts, persons with disabilities continue to face barriers to their full participation in society. In the United States, Americans with disabilities still experience discrimination in the workplace and in their communities. In developing nations, 90 percent of children with disabilities do not attend school, and women and girls with disabilities are all too often subjected to deep discrimination.
If we are to move forward as a people, both at home and abroad, all individuals must be fully integrated into our human family. The International Day of Persons with Disabilities is a time to renew our commitment to the principles of empowerment, dignity, and equality. The United States has co-sponsored and joined consensus on the United Nations General Assembly Third Committee's resolution titled, "Realizing the Millennium Development Goals for Persons with Disabilities." We must continue to embrace diversity and reject discrimination in all its forms, and insist on equality of opportunity and accessibility for all. Let our efforts remind us that when we work together, we can build a world free of unnecessary barriers and include every member of our international community.
NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim December 3, 2009, as International Day of Persons with Disabilities. I call on all Americans to observe this day with appropriate ceremonies, activities, and programs.
IN WITNESS WHEREOF, I have hereunto set my hand this second day of December, in the year of our Lord two thousand nine, and of the Independence of the United States of America the two hundred and thirty-fourth.

(All information provided via the Weekly Advocacy Monitor, ncil.org )