Thursday, July 14, 2011

Enlightenment in darkness

Thursday, July 14,2011

Enlightenment in darkness

Blind Café builds bridges between blind and sighted worlds

By Sara Kassabian
photo by Sue France

In many wander. While touring as a ways, Rosh Rocheleau’s life evokes a Kerouac sense of musician in Iceland, Rocheleau literally stumbled into a darkened café and found himself enlightened.

“The waiters were blind, and they sent me in with a cane just by myself,” Rocheleau says. “I had to find my way in the pitch dark. I couldn’t see anything. It was a cool experience, and I just thought it would be great to bring back to Boulder. But I didn’t know anyone who was blind, so it took me maybe three or four years to find somebody who was.”

Years later, while attending Naropa University, Rocheleau steadily became connected to the blind community in Boulder and created the foundations of the Blind Café — a touring event that stops locally, as well as in Portland and Austin. The blind café has become an anticipated slice of culture in these communities. Rocheleau says he did the event just to try it, and did not expect it to turn into a sustainable business.

“I just kind of thought we’d just try it or do it,” Rocheleau says. “And then I was going to go on a trip — I happened to be in Big Sur, Calif. — and I was about to buy a ticket to Thailand, and I kept hearing this voice going off in my head [saying], ‘Go to Portland and start a blind café,’ and I was so unhappy not doing that, that I just went to Portland and started a blind café.”

The Blind Café also donates a portion of its proceeds to a local foundation supporting the blind community.

The Boulder Blind Café will be supporting the Boulder Guide Dog Puppy Raisers, an organization that trains puppies to be guide dogs for the blind.

Suspending sight helps take people out of their worries and into their present state, Rocheleau says.

“My understanding is that the fundamental principle is that people go in there, and because we don’t have our vision, we are suddenly like, ‘I don’t know how to do anything anymore,’ and the world is new,” Rocheleau says. “We have to engage and be more present and more aware and more sharp-thinking and mindful.”

The Blind Café seats patrons at community tables in a completely dark room. For many participants, this is the first time they have been unable to see.

“Chaos is actually part of it,” Rocheleau says. “It’s welcomed. I’m creating a situation where I want people to be uncomfortable — I want people to come and be like, ‘I don’t know what to do!’ And all of a sudden they have to sum up that sense of courage that we all have inside of us when we’re faced with a challenging situation.”

The Blind Café is set up in the basement of a church. A blind wait staff helps those accustomed to sight — helping them walk, navigate and pour water in complete darkness. The event concludes with a musical performance from Rocheleau’s band, Rosh & One Eye Glass Broken, as well as speeches and a Q&A with some of the blind volunteers.

Gerry Leary is the keynote speaker at the Blind Café events and owner of the Unseen Bean, a local coffee shop and roasting company. In his speech, Leary shares his experiences being born blind and answers the audience’s questions about the sightless world.

“I can’t compare this to a normal life because I’ve never lived a normal life,” Leary says. “I have been blind since I was born … so I have no perception at all of vision or no understanding of what it is other than what you might technically describe on paper.”

Rocheleau says that Leary helps ease the discomfort of people who find themselves sightless for the first time at the Blind Café, and also ease the sense of isolation many blind individuals feel.

“So, in essence, we try to build a situation that shows life as a blind person as being normal, and life as a sighted person as being different,” Leary says. “We try to set up a situation such that people can use their other senses to learn about and understand their world and try it without vision.”

Leary says, as far as he’s concerned, life without vision is more a nuisance than a disability. He found early success in fields requiring kinetic skills, working as a car mechanic for 40 years and a coffee roaster.

Leary says he started working on cars at the age of 2. While his brothers were interested in comic books and television, Leary found the sound and mechanics of cars to be enthralling.

“My world was discoverable through my hands,” Leary says. “So that’s where my eyes were. I could look at cars because they were hard, solid objects and they were in pieces, and pieces could come off and go back on and they had nuts and bolts and that means I could take them off and put them back on. I could ask about them and learn about them, and I could experiment with them. So for me that was a real avenue for stimulation.”

Rocheleau says that the event is in no way a simulation of what it means to be blind, but does help build community, create mental presence in sighted individuals and help build blind awareness.

“They discover that functioning as a blind person is not nearly as hard as they thought it was,” Leary says. “They do realize that it’s an awful lot of work to change, but they realize that it’s possible.”

Rocheleau says the Blind Café also helps empower the blind wait staff by putting them in a leadership position.

“It’s a reverse role,” he says. “Usually, a blind person is walking down the street and people come up to them and say, ‘Hey, can I help you? Do you need any help?’ ... But in this situation, when you’re in the dark — say you’re a guest and you just spilled water all over yourself and your neighbor, and you need a napkin, and you don’t know how to function, and you’ve got to go to the bathroom — you can call a server, and they can lead you.”

Respond:letters@boulderweekly.com

Blind commission puts people to work

Blind commission puts people to work
Letters to the editor
, Jul 14, 2011


CHRISTOPHER ONSTOTT / PORTLAND TRIBUNE
Gary Jackson, who is visually impaired, bags groceries at his Portland Building concession stand. The Oregon Commission for the Blind is given preference to run such concessions, under a longstanding program designed to provide jobs and training to blind people. Public health reformers say the commission is resisting efforts to provide healthy snacks.

I am writing in response to your recent article, “Battle for healthy snacks” (May 26), regarding the Oregon Commission for the Blind.

This story immediately caught my eye because of the man featured in the front-page photo, Gary “Big Jack” Jackson. Big Jack and I attend the same church, and he is one of my favorite people there.

However, I was incredibly disappointed with the text and tone of the article. I would not attempt to speak for Big Jack here, but I will say that he is an educated, intelligent man who once had good health and a successful career. When an illness took his eyesight, he had to make drastic changes in his life.

His training and assistance from the Oregon Commission for the Blind in setting up that business has enabled him to independently get out into the working world each day. In turn, he uses his accessibility there and his incredibly positive spirit to mentor many of the people he meets.

Why would you use his photo and then not share his views about the issues covered in the article?

I put this question to your readers: If you were suddenly struck with the same disability and an article such as this one results in the Oregon Commission for the Blind shutting it’s doors, where will you go to learn how to go out into the world on your own, handle your money, use a computer and phone, etc.?

Karen Crichton

North Portland


People don’t want ‘healthy’ snacks
I know they don’t teach this in college, but the purpose of business is to make a profit — not sell products people don’t want — regardless of what the social engineers would have you believe (“Battle for healthy snacks”, May 26).

I suppose the Legislature will need to pass more laws to prevent people from buying what they want. Oh wait. They have already done that.

Geoff Rode

Southeast Portland


Story didn’t represent blind
I find it very curious that Mr. Law did not interview one single blind person involved in the program (“Battle for healthy snacks,” May 26). Why not, I wonder?

I know a few of the vendors in question. They do offer healthier options in their machines — sometimes by request, and sometimes because of arm-twisting. In many cases, the food expires, unsold, representing both a loss of inventory due to spoilage and a loss in sales because that slot in the machine is taken up by snack items that customers find unappealing.

In other, particularly large sites, it seems to me that spending money on inventory that nobody is going to buy is probably bad for business. I’m neither a vendor, a businessman, nor anyone involved in planning these things, but for some reason Mr. Law decided not to report on any of that. What is the agenda here?

Joseph Carter

Newton resident advocating for changes in special ed law Read more: http://www.heraldnews.com/archive/x1223068302/Newton-resident-advocating-for-chan

By Chloe Gotsis

When he’s not taking classes at MassBay, working at one of his three jobs or volunteering, Brian Heffernan is making sure that other young people with Down syndrome and other intellectual disabilities get the same opportunities he’s had.

Most recently, Heffernan, 20, of Newton, has been advocating for a bill at the State House that would change the special education licensing requirements to provide optional advanced training for teachers who want to focus on transitioning children with intellectual disabilities into the competitive work force. Newton resident Julia Landau, senior project manager for the advocacy group Massachusetts Advocates for Children, said the bill would allow more children with intellectual disabilities like Down syndrome and autism to become productive members in their communities.

“Right now three-quarters of the youth with disabilities in our state ages 16-26 end up in sheltered workshops or [day habilitation] programs or unemployed and we know that youth with disabilities when provided the appropriate transition planning and services can measure up with their potential and can live and work competitively,” she said. “That’s the difference between the tapped and untapped potential.”

Heffernan has been taking classes in courses like criminology, mass media and career and life planning at MassBay for the past two years through the school’s partnership with the Newton Public Schools. The Inclusive Concurrent Enrollment grant program allows public high school students with severe intellectual disabilities who are between 18 and 22 and have not yet passed the MCAS test the opportunity to take inclusive college courses aligned with a career goal.

“I’m really proud of the career and life planning class,” Heffernan said. “It made me think a lot about my career.”

During the school year, Heffernan takes public transportation from his house in Newton to the Wellesley Hills MassBay campus, takes general college classes with his peers and works out after school in the school gym. Last summer, Heffernan was looking for activities to join on campus and noticed that the college didn’t have a glee club like his favorite TV show, “Glee,” so he researched and sought out the required number of signatures to form his own glee club.

Heffernan said his classes at MassBay have helped him decide that one day he wants to have a career in the film or television industry. He’s already written a 52-page TV script, “The Heffernan Show,” loosely based on “The Cosby Show.”

“One day I got on my computer and just started writing,” he said, while walking around MassBay last week.

In between his busy class schedule at MassBay and camp during the summer Heffernan finds time to work as a host at Wally’s World in Fenway Park, as a bagger at Shaw’s Supermarket in Auburndale and as a guest speaker in the “Understanding Our Differences” curriculum in the Newton Public Schools. He speaks to graduate students about his disability at Brandeis, Harvard and Boston universities and during the summer he volunteers at City Hall delivering mail and stacking books at the Newton Free Library.

“He’s really remarkable,” said Landau of the Massachusetts Advocates for Children, in a phone interview.

Heffernan’s mother, Julie Hefferman, said that her son wants to continue to take classes at the college after he passes his English MCAS test. She said that once he passes the English MCAS test he will place out of the special education program in the Newton Public Schools, but will still be able to receive special education services at the college.

“We’ve had a partnership for the past five years with the [Newton schools] to give students with intellectual disabilities the opportunity to take college courses,” said Jayme Finstein, inclusive concurrent enrollment grand coordinator at MassBay. “The goal is to have the courses connect with future career goals. You spend your whole day on campus doing anything that any other student would do.”

Julie Heffernan said her son has flourished through his classes and the new friends he has made at MassBay.

“On Facebook, he has all these friends we’ve never met because he has this whole college life now,” she said.

Landau said she is hopeful that the bill will soon be voted out of the Joint Committee on Education.

“I firmly believe that government has an obligation to care for the most vulnerable amongst us by providing opportunities to those at risk to succeed and live independent fulfilling lives,” said Sen. Steve Tolman, a lead sponsor of the bill, in a statement.

Staff writer Chloe Gotsis can be reached at 781-433-8333 or at cgotsis@wickedlocal.com



Read more: http://www.heraldnews.com/archive/x1223068302/Newton-resident-advocating-for-changes-in-special-ed-law#ixzz1S6Mk6oue

Organization helps students with disabilities find work

A group of parents from Naperville started an organization that focuses on job opportunities for their children and peers with disabilities.

NapervilleWorks started in 2007 as a partnership between parents, local business professionals and school vocational coordinators. Marjorie Sillery is one of the parents involved.

"We literally go out into the community, meet with businesses, meet with civic groups and give them the benefits of working with students with intellectual abilities," Sillery said.

Students in the program are from Naperville school districts 203 and 204 and also Indian Prairie District 204 from ages 18 to 21.

"There is so much need out there, especially in this area for jobs for the students," said Sillery. "Sadly, when they leave transition, only about 10 percent of them are employed at any level full-time or part-time."

Alex Lints is lucky. He has autism spectrum disorder and is working part time as a clerk at Naperville's school district's office. At 21, his mom Deborah is grateful that her son has a job.

"He right now started this job two days a week for a couple of hours a day, and hopefully as time goes on that will increase," said Deborah. "He needs that interaction with people and it helps him to grow as a young adult. My prayer for three years has been, 'Just please give him a job that he will be comfortable in working with people and to have it be here in the school district.' It's really phenomenal."

Vocational coordinator and transition specialist for the Indian Prairie School District Cyndy Perez says NapervilleWorks is a great resource for them.

"They help us by developing leads, by creating awareness, and then it gives us a lot more to go with," said Perez. "So we as the school district can get out there and develop the job and help train the students to make a long-term successful employment opportunity."

Alex is a good example as this kind of partnership is unique.

"I know of no other organizations quite like NapervilleWorks in the state of Illinois," said Perez. "The unique thing about NapervilleWorks is that it harnesses the network of all the parents and the community, and it brings all those linkages to the school system that may only have a couple of vocational coordinators to develop opportunities...We're going to need a lot more organizations like that I think to get these young adults employed, because without that, there's not going to be jobs for them, and they're good workers."

To learn more about NapervilleWorks go to napervilleworks.webs.com.

Nevertheless: Campaign working towards a disability inclusive society

By Lavanya Srinivasan | Published: July 08 2011

‘Never-the-less’ by Fourth Wave Foundation is a campaign to generate awareness for the disabled in our society and address issues like education, jobs and their livelihoods.

Campaign working towards a disability inclusive society Photo: Fourthwave FoundationCampaign working towards a disability inclusive society Photo: Fourthwave Foundation

Owing to lack of knowledge, educational
access and technology, disabled children were initially segregated from other children in schools. However in recent times there has been a shift towards having children with disabilities attend the same schools as non-disabled children. ‘Never-the-less’ is a campaign for inclusion of people with disability which will engage 6, 00,000 school and college students along with corporate employees and management, and local communities. The goal is to create awareness and sensitize people about inclusion of persons with disability in their immediate environments. The campaign across 6000 government, aided and private schools in urban and rural Bangalore will be conducted in partnership with Sarva Shiksha Abhiyan.

“The campaign is to promote as a matter of law or policy, the principle of inclusive education and society. The basic premise is that the school should meet the educational needs of all children irrespective of their disabilities or limitations. Inclusive education is nothing but `Making the programme for disabled children as an integral part of the general educational system rather than a system within general education.” explains Diana Vincent Joseph, Director, Fourthwave Foundation.

Diana Joseph, Director, Fourthwave Foundation with College students.jpg Diana Joseph, Director, Fourthwave Foundation with College studentsDiana Joseph, Director, Fourthwave Foundation with College students

The campaign is an initiative of the Fourthwave Foundation which has been working to address inclusion of persons with disabilities through specially designed projects such as Nanagu Shaale which involves all segments of society and the Government to enable significant transition from segregated to inclusive education. “A small change of perception can make big difference in the life of persons with special needs and disabilities. If we could walk hand-in-hand, provide the same opportunities and conveniences, it can make life less of a battle and more of a healthy challenge for all. In addition to physical infrastructure for the disabled, the cornerstone of this idea for inclusion is you and me. It is up to us to open our minds to people with disability and understand them for what they are. Never-the-less is a movement to make us look beyond their disability and the see them for what they are capable of.”

Over 6,00,000 children will be engaged at their respective schools through an art activity, skits, audio-visual screenings on the theme of ‘inclusion’ and ‘diversity’ and interaction with persons with disabilities. The school activity is being coordinated by hundreds of employee volunteers with the active support of corporate and through NASSCOM. Student volunteers from colleges will reach out in their campus and in public places through experiential activities, exhibitions and audio-visual screenings to create awareness about the barriers and battles persons with disability face, in their day-to-day lives.

The campaign will also invite college students to contribute suggestions and solutions through mobile video clips on simple ways of removing barriers that will make their lives less of a challenge so that they may participate in mainstream society. 70 million people in India (6% of our population) are estimated as persons with disabilities, but sadly only 2% of them have seen through School and only 1 % gainfully employed. Our ignorance of what persons with disability can and cannot do and lack of facilities that make life simpler comes as a barrier for them to live a productive life with dignity.

Statement of the Department of Justice on enforcement of the integration mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.

U.S. Department of Justice. (2011, June). Statement of the Department of Justice on enforcement of the integration mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C. Washington, DC: Author.

Abstract

In the years since the Supreme Court’s decision in Olmstead v. L.C., 527 U.S. 581 (1999), the goal of the integration mandate in title II of the Americans with Disabilities Act – to provide individuals with disabilities opportunities to live their lives like individuals without disabilities – has yet to be fully realized. Some state and local governments have begun providing more integrated community alternatives to individuals in or at risk of segregation in institutions or other segregated settings. Yet many people who could and want to live, work, and receive services in integrated settings are still waiting for the promise of Olmstead to be fulfilled.


In 2009, on the tenth anniversary of the Supreme Court’s decision in Olmstead, President Obama launched “The Year of Community Living” and directed federal agencies to vigorously enforce the civil rights of Americans with disabilities. Since then, the Department of Justice has made enforcement of Olmstead a top priority. As we commemorate the 12th anniversary of the Olmstead decision, the Department of Justice reaffirms its commitment to vindicate the right of individuals with disabilities to live integrated lives under the ADA and Olmstead. To assist individuals in understanding their rights under title II of the ADA and its integration mandate, and to assist state and local governments in complying with the ADA, the Department of Justice has created this technical assistance guide (abstract from document).

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Still in the shadows with their future uncertain: A report on family and individual needs for disability supports. Summary of key findings and a call

The Arc. (2011, June). Still in the shadows with their future uncertain: A report on family and individual needs for disability supports. Summary of key findings and a call to action. Washington, DC: Author.

Abstract

In 2010, The Arc conducted a national online survey, called the FINDS Survey, to obtain perceptions of individuals with intellectual and developmental disabilities and their families on a range of life-span issues. These issues included education, transition, employment, transportation, community living, housing, family joys and concerns, and many more relating to various aspects of living. With more than 5,000 responses, the results have provided families, providers, researchers, legislators, and other key stakeholders with an unprecedented depth of current information as reported by families connected to I/DD.


Families from all 50 states and DC completed surveys. People with disabilities responded from 38 states and DC. Nearly 5000 caregivers responded (4,962) as did 558 people with disabilities. The vast majority of caregiver respondents were family members (95%) who are living with their family member with disabilities (75%).


Despite gains in many areas, overall the results from the FINDS survey show that our efforts as a nation have fallen short of the vision of an America where people with intellectual and developmental disabilities are accepted and have the supports they need to live to their full potential in the community (abstract fromhttp://www.thearc.org/page.aspx?pid=2990).

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